What is Pectus Excavatum Anyway?

It’s weird thinking that twelve months ago today, my health journey had yet to begin. I was unwell at the time, but never in a million years could I have imagined what was just around the corner. The last year has been consumed by keeping this body of mine going, it’s strange thinking that a…

Suddenly Sick

A much overdue diagnosis story. A year ago I was a young(ish) mum of two, I loved hiking in the National Park surrounding our house, and I was busy making plans for the year ahead. It was December, and we’d just had a stressful month with our daughter finishing up at primary school, Christmas, very…

When You’re Misdiagnosed

I’ve spoken a bit about my journey to diagnosis with POTS or postural orthostatic tachycardia syndrome on this blog here But this post is a bit different. This is what happened in mid 2017 when I got fed up with being tired all the time and my heart going bonkers whenever I tried to walk anywhere.…

Through The Curtain: The Things You Learn About Your Fellow Patients

I’ve just arrived home from a few days in hospital hooked up to the cardiac monitors. Last time, I flew through ED and Acute Care and it wasn’t long before I had a bed on the cardiology ward. Well, by flew through, I mean it took around seven hours, and I was settled in my…

So You’ve Just Been Diagnosed With POTS

Shit. Sorry. I bet your head is spinning right now. You’ve probably found this post after frantically Googling through tears, painfully aware of your heart thumping away in your chest. Have you found the stuff about the POTS patients who are tube fed and reliant on wheelchairs to get around? I remember reading that and…